It turns out that if you put off replacing aging scleral contacts for a couple of years, they become brittle and might crack as you gently clean them in your hands. Good to know. And that’s why I’m dealing with unforeseen circumstances — meaning, in my present state, I can’t see circumstances for shit.
I’ve written about keratoconus here a few times. It’s a total bummer. The eyeballs lose their shape, and one’s eyesight gets wacky. As it’s a structural degradation of the eye itself, glasses aren’t too much help. Scleral contacts are your best bet (unless you want to live la vida loca and get a corneal transplant, which I am not wont to do).
The good news is I found a rad new eye doctor on a friend’s recommendation. She has keratoconus, too, which is bad news for her but good news for me. It’s nice to have a doctor who understands your condition and what you’re going through first-hand. This doc is also about 5 minutes from my house. That proximity is a novelty — over a decade ago, when first diagnosed, there were so few eye specialists dealing in keratoconus that I had to be driven (as I couldn’t safely drive) four hours to Miami. I did that almost monthly for a year. And my new doc had to do the same thing at the time.
I saw this doctor yesterday and was thoroughly eye-prodded and iris-scanned to get the perfect fit for my new scleral lenses. I can’t wait to get them. Because right now, I’m legally blind. And I’ll remain this way until the contacts arrive, which appears to happen next Thursday.
I won’t get into what these things cost. I’ll just say that if you wear ‘normal’ contacts, multiply your price by at least five. But I can’t normally function, easily work, or do much of anything enjoyable without my expensive bionic eyes. That keratoconus is not covered by any insurance plan I know of is another white mark on the chalkboard of health care crimes in the good ol’ USA.
But I can blog, right? Sure! But if you spied into my window, you’d see me holding my phone up to my face, typing on the tiny keyboard with my thumbs. It’s so much comfier on my peepers to do it this ridiculous way than looking into my huge 29″ computer monitor. And watching movies? On my iPad, also held maybe five inches from the tip of my nose. So, what do you have planned for the week ahead? I’ll be holding various devices against my nose.
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I also realized that I hadn’t posted my BNDCMPR playlist for June. So, here it is. As always, this playlist is a selection of fantastic songs I ran across on Bandcamp over the past month. The playlist is shorter this time, but the quality is mountain high. If you dig anything I included, then feel free to purchase the tune. Or, at least, follow the corresponding artist or label on Bandcamp. Enjoy!
[…] eyes are a mess. You probably already know this. Funny thing: I’ve only been admitted to a hospital once — at the age of 12, I stabbed […]